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Helping People Find Their Way

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Living with unexplained symptoms can be confusing, frustrating, and isolating. Many people feel dismissed, overlooked, or lost within the healthcare system.

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Forgotten Patients, Overlooked Diseases exists to support people with persistent or medically unexplained symptoms, through education, research, patient stories, and practical guidance.

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Registered charity no. 1202442

Background

Understanding the terminology

Confused by the language surrounding persistent symptoms, undiagnosed conditions and overlooked diseases? Explore our definitions to understand the key terms and what they mean.

Understanding the terminology

Support, Information and Action

We are here to help people with unexplained symptoms find solutions, find information, support and possible next steps, share their experiences, and help improve the way unexplained symptoms are understood and addressed

Research and change

We support research and drive meaningful change to improve care for overlooked patients

Support and signposting

We provide support and help people find the right information, services and next steps

Education and awareness

We produce publications and organise events to help people understand their health and care

Patient Stories

Real experiences from people living with unexplained and overlooked conditions. Discover stories of challenge, resilience and hope

Want to get involved?

There are many ways to support our work and help make a difference

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Practical resources

GP visits

Tips to help you prepare, communicate and get the most out of your appointment

Hospital appointments

Practical advice for navigating hospital visits and keeping track of information

Medically unexplained symptoms

Information, strategies, and support for living with uncertainty

Useful links

A curated selection of resources to help you find reliable information, support organisations, practical guidance, specialist services and community support

Enduring symptoms conference

Features

Jess's Rule

An important step forward in patient safety

Movement for good

Providing funding for charities

Latest from FPOD

Make diagnostic doubt visible in healthcare

Make diagnostic doubt visible in healthcare

Why diagnostic uncertainty matters, and how we can create a fairer, safer healthcare system for people with unexplained symptoms

Recognising Rare Diseases in the Emergency Department

An important discussion  with Dr Eva Diehl- Wiesenecker on the challenges and opportunities for earlier recognition of rare diseases in emergency care

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