Forgotten Patients, Overlooked Diseases

Living with symptoms that don’t fit a diagnosis can be isolating, but you are not alone — We aim to develop resources that help people with complex symptoms find a diagnosis and the support they need.

Some have rare genetic conditions; others show unusual features of recognised diseases. Many will not have a diagnosable cause for their problems. They often feel lost and forgotten in the healthcare system — their concerns dismissed, their symptoms overlooked.