Forgotten Patients, Overlooked Diseases
Living with symptoms that don’t fit a diagnosis can be isolating, but you are not alone — We aim to develop resources that help people with complex symptoms find a diagnosis and the support they need.
Some have rare genetic conditions; others show unusual features of recognised diseases. Many will not have a diagnosable cause for their problems. They often feel lost and forgotten in the healthcare system — their concerns dismissed, their symptoms overlooked.
Our Mission
Life without a diagnosis is difficult. Our multidisciplinary team offers:
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Evidence-based signposting and resources
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Support for individuals, families, and healthcare professionals
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Education and awareness
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A platform for collaborative research
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We aim to shed light on this poorly understood area of medicine and improve outcomes for those affected.​​​​​
We aim to develop resources that help people with complex symptoms find a diagnosis and the support they need.
Feeling Lost & Forgotten
Some have rare genetic conditions; others show unusual features of recognised diseases. Many will not have a diagnosable cause for their problems. They often feel lost and forgotten in the healthcare system their concerns dismissed, their symptoms overlooked.